Learn about epidermolysis bullosa (eb), a rare genetic disorder, its symptoms, treatments, and personal stories from the eb community at debra of america. Its mission is to help patients, families, and doctors in countries where there is no debra structure to support them and to assist new groups to form and develop. Founded in 1980, debra of america is dedicated to improving the quality of life of all people impacted by epidermolysis bullosa (eb) in the u.s.
Get to know the dedicated team behind debra of america, working tirelessly to support individuals and families affected by epidermolysis bullosa (eb). Explore our mentorship programs, eb nurse educator program, new family advocate program, debra care conference & additional support services. When there seems to be no way out, there's debra of america, a lifeline for thousands of families living with “the worst disease you’ve never heard of,” epidermolysis bullosa (eb).
833-debraus (833-332-7287) our team is here to support you with any questions or. With your support, debra of america provides free programs and services that ease the unrelenting physical, emotional, and financial burdens of eb. La pagina de internet de debra provee pacientes, cuidadores y profesionales de salud con la información mas reciente sobre eb, mientras ofrece un lugar donde la comunidad de eb puede.
Debra of america is here to guide you in making informed decisions surrounding proper eb care.
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